an Oh Myyy Property

Baby Born Without Skin In San Antonio Due To Rare Condition Is Defying The Odds


The parents of Ja'bari Gray, a baby boy born on New Year's Day in San Antonio, have only been able to hold their son twice in three months––because Ja'bari has no skin.

Ja'bari was born with most of his skin missing, except on his head and legs. He was later moved to Texas Children's Hospital in Houston, because the team of specialists there has experience treating rare skin conditions.

Earlier this week, doctors told his parents, Priscilla Maldonado and Marvin Gray, that their son might not have Aplasia Cutis, a rare skin condition that medics in San Antonio had previously determined was the cause of his missing skin.

According to The San Antonio Express-News:

"The Houston physicians told her he might be suffering from Epidermolysis bullosa, a rare genetic connective tissue disorder that affects only 20 newborns out of 1 million live births in the U.S."
"The hallmark of EB is extremely fragile skin that blisters and tears from minor friction or trauma. There is no cure, but the disease can be managed, with pain medications, infection control and other measures."
"To see if this is the cause of Ja'bari's condition, Maldonado, Gray and Ja'bari are undergoing genetic testing, because most forms of the illness are inherited."

"It could be two to three weeks before they have an answer," said Maldonado. ""They don't want to treat my son for the wrong thing."

Maldonado recalled her son's birth to News 4 San Antonio:

"It was just completely silent. You expect people to be happy after you have a baby and I had no idea until they put me in a room and explained what was going on."
"I was just confused, lost. I didn't know what was going on. What what was going to happen."

Ja'bari, in addition to his skin condition, was born with his chin fused to his chest. His eyes, toes and fingers "are also fused shut," according to one report, and he requires surgery to open his airway so he can breathe on his own.

Ja'bari's parents have started a GoFundMe campaign in the hope of covering their son's mounting medical bills:

"Each and every day is a blessing that he is still fighting to live on this Earth , and donation [sic] big or small will be such a blessing to us thank you and keep following his fight."

The campaign has, as of this writing, raised more than $46,000 since it began last month.

Ja'bari almost didn't receive treatment for his condition because Medicaid officials told Maldonado that her insurance wouldn't cover his transfer and treatment in Houston because the hospital was out of network.

This fact prompted many to chime in with support for the child.

Medicaid eventually reversed its decision following extensive media coverage.

It takes a serious survival instinct to make it through school. It's one of the hardest environments in which to thrive, but these students have come together to share their secrets and make the school experience a little easier.

Keep reading... Show less

Breakups suck. Even when they're the best thing for you and everyone involved is good with it, they're still kind of sad. It's so much worse when you realize the breakup was a huge mistake. One Reddit user asked:

What was your 'oh sh!t' moment when you realized you shouldn't have broke up with your ex S.O.?

Keep reading... Show less
Mafer Hmurphy/Facebook

An employee of Bucky's gas station in Naperville, Illinois was fired after a video displaying his racist behavior went viral.

Keep reading... Show less

Tucker Carlson has a long history of flirting with White supremacist ideologies, and it's starting to get noticed more and more.

As advertisers shy away from his show, where he regularly expresses views too extreme for them to handle, Carlson's producers reached out to Berkeley City Council member Rigel Robinson for a guest appearance.

Robinson declined the invitation in the most epic way possible.

Keep reading... Show less

Influencers can make a living by taking glamorous pictures, but that doesn't mean the occasional mistake doesn't sometimes slip by the photographer's eye.

Keep reading... Show less
Deplorables Choir/YouTube; @BlackJohnRoss/Twitter

The Deplorables Choir—a trio of women in MAGA hats that ask people on YouTube to send them money via PayPal so they can "ROCK" the entertainment industry—just released their latest song.

"Real Women Vote For Trump" is a feast for the senses, full of intelligent lyrical phrases and sweeping melodies.

Keep reading... Show less