an Oh Myyy Property

Baby Born Without Skin In San Antonio Due To Rare Condition Is Defying The Odds


The parents of Ja'bari Gray, a baby boy born on New Year's Day in San Antonio, have only been able to hold their son twice in three months––because Ja'bari has no skin.

Ja'bari was born with most of his skin missing, except on his head and legs. He was later moved to Texas Children's Hospital in Houston, because the team of specialists there has experience treating rare skin conditions.

Earlier this week, doctors told his parents, Priscilla Maldonado and Marvin Gray, that their son might not have Aplasia Cutis, a rare skin condition that medics in San Antonio had previously determined was the cause of his missing skin.

According to The San Antonio Express-News:

"The Houston physicians told her he might be suffering from Epidermolysis bullosa, a rare genetic connective tissue disorder that affects only 20 newborns out of 1 million live births in the U.S."
"The hallmark of EB is extremely fragile skin that blisters and tears from minor friction or trauma. There is no cure, but the disease can be managed, with pain medications, infection control and other measures."
"To see if this is the cause of Ja'bari's condition, Maldonado, Gray and Ja'bari are undergoing genetic testing, because most forms of the illness are inherited."

"It could be two to three weeks before they have an answer," said Maldonado. ""They don't want to treat my son for the wrong thing."

Maldonado recalled her son's birth to News 4 San Antonio:

"It was just completely silent. You expect people to be happy after you have a baby and I had no idea until they put me in a room and explained what was going on."
"I was just confused, lost. I didn't know what was going on. What what was going to happen."

Ja'bari, in addition to his skin condition, was born with his chin fused to his chest. His eyes, toes and fingers "are also fused shut," according to one report, and he requires surgery to open his airway so he can breathe on his own.

Ja'bari's parents have started a GoFundMe campaign in the hope of covering their son's mounting medical bills:

"Each and every day is a blessing that he is still fighting to live on this Earth , and donation [sic] big or small will be such a blessing to us thank you and keep following his fight."

The campaign has, as of this writing, raised more than $46,000 since it began last month.

Ja'bari almost didn't receive treatment for his condition because Medicaid officials told Maldonado that her insurance wouldn't cover his transfer and treatment in Houston because the hospital was out of network.

This fact prompted many to chime in with support for the child.

Medicaid eventually reversed its decision following extensive media coverage.

Beloved Scene/YouTube, HBO, @FairallJane/Twitter

Warning: This article may contain spoilers for those who have not watched the "Game of Thrones" series finale.

The final of season of Game of Thrones went out on an epic note that many considered was not necessarily a good one.

Many devoted fans who have followed the HBO fantasy series based on George R. R. Martin's A Song of Ice and Fire novels since April 17, 2011 felt let down.

Common reactions included viewers feeling slighted by rushed writing that led to an online petition demanding HBO remake the eighth season with "competent writers."

Keep reading... Show less
PA Real Life/Collect

A young mum has revealed how she gave birth and went into the menopause just weeks apart thanks to treatment for the bowel cancer doctors found when she was 35 weeks pregnant with her first child.

Keep reading... Show less
@NorthantsPolice/Twitter and @AGoldmund/Twitter

A bizarre police e-fit appeal, a digital version of a police sketch, has attracted a lot of attention after people compared the wanted man with a Lego figure.

Northamptonshire Police issued the image to try to catch a distraction burglar who knocked on a woman’s door and told the occupant he needed to check the pipes due to “sewage issues”.

Keep reading... Show less
PA/Real Life Collect

A mum-of-two subjected to a campaign of terror by a nightmare neighbour which culminated in a vicious attack – leaving her with 21 stitches to her face – has slammed judges after her assailant was spared jail.

Keep reading... Show less

The fast food restaurant Chick-fil-A has a long, well-known past of donating to anti-LGBTQ causes.

Several times in recent years, the organization has been called out and boycotted for its intolerance, in response to which the company has offered apologies and regrets over their past stances.

Keep reading... Show less

*Warning: light Game of Thrones spoilers ahead!*

As Game of Thrones officially wrapped its final season, many of the stars are revealing the iconic props they managed to steal off set as keepsakes of their time on the show.

Keep reading... Show less