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Blogger With Incredibly Rare Sunlight Allergy Forced To Live Like A Real-Life Vampire

Andrea Ivonne (PA Real Life/Collect)

A courageous blogger has revealed her remarkable lust for life, despite suffering with a one-in-a-million genetic condition which forces her to shun sunlight – like a vampire – and has plunged her into menopause at just 26.


Covered in thousands of freckles, Andrea Ivonne Monroy, 26, who has xeroderma pigmentosum (XP) – where the skin cannot repair DNA damage caused by sunlight – never goes out during the day, unless it is for a medical appointment, and then she has to carefully protect her body and face.

And the incurable condition, which shortens life expectancy to just 37, also increases sufferers' cancer risk and means women need to have children young, before their hormones change.


Andrea Ivonne PA Real Life Collect

Yet Andrea Ivonne, who lives with her parents in San Diego, California, where there are on average 146 sunny days and 117 partly sunny days a year, refuses to see XP as a handicap, saying:

“I just love being this human that I am. I'm complete with the human I am. I'm complete with everything I am and what I have."
“I am in the menopause, as women who have what I have go through the menopause faster than women without it, but I don't want to have children. I wasn't born to be a mother."
“You don't need a significant other to be complete. You don't need a child to be complete or to be a woman. I'm fulfilled because of who I am, the person I've become and I just love what my life is."

Having XP means the home Andrea Ivonne shares with her parents, Martin and Maria, must be kept dark during the day with curtains that block out UV light.

Andrea Ivonne PA Real Life Collect

The family can only use LED lightbulbs inside and Andrea Ivonne has to carry a light meter with her and wear a protective hat and mask if she does leave the house.

Having XP increases her risk of developing all types of skin cancer, including melanomas – which can spread to other parts of the body – and since the age of six, when she had her first surgery to remove cancerous growths on her face, she has had 27 operations.

Andrea Ivonne PA Real Life Collect

“That first surgery was my first real memory of knowing there was something weird going on with me," she said.

“I woke up after the surgery and it really hit me."

Her body's severe reaction to all light, but especially sunlight, means daylight actually hurts her eyes – a common symptom amongst XP sufferers.


Andrea Ivonne PA Real Life Collect

“It can feel as if my eyes are burning," she said.

“I wear a hat that has a protective see-through guard and if I do have to go outside in daylight, I will check the light levels using my light meter and go home if they are too strong."

The family car even has blacked out windows, so that Andrea Ivonne can travel outside the home, but she tends to stay indoors in the dark and only ventures out at night.

Andrea Ivonne PA Real Life Collect

“I'm not out partying and going to bed when other people get up," she said.

“I sleep normally at night and get up in the morning, just like other people do. The difference is I don't go out in the day. I work from home on my blog and my YouTube channel."

Andrea Ivonne's XP also meant she had to be home-schooled by her mum and she has never been able to go out to work.

And in 2014, when she attended the XP Family Support group conference, she learned that female XP sufferers need to have children before their late twenties, because the condition also means they will go through an early menopause.

Andrea Ivonne PA Real Life Collect

“From the age of 11 or 12, I knew I never wanted kids," said single Andrea Ivonne.

“I just never saw myself in the future with children."

She has, however, admitted in her blog called nightlens that going through the menopause is tough.

“My body is so tired. I get exhausted a lot, my moods have been on a roll, my migraines are back and so many other things have been going on with me."
“But I am getting better and I am slowly getting back to my old self and that feels wonderful."

As she has got older, Andrea Ivonne has also found that, while the cancerous growths she developed used to just be on her face, there are now signs of other parts of her body being affected, too, including her stomach and hands.

Andrea Ivonne PA Real Life Collect

As a result, she has had them removed. Another heartbreaking factor is her low life expectancy but, again, this is something which Andrea Ivonne refuses to dwell on.


“I am really happy with my life and see how beautiful life is," she said.

Still, despite all the restrictions XP has imposed on her life, the brave young woman remains admirably positive.


Andrea Ivonne PA Real Life Collect

“I'm okay with it all now," she said.

“Four years ago, I had a really bad depression over it but then I decided to learn to love myself."
“I read of lot of inspiring books and took up yoga and meditation, and now I am happy in a way I never thought I could be."
“I never imagined I would be working as a blogger or have my own YouTube channel and so I think it was all just meant to be."


She concluded:

“If I think about my life five years from now, I want it to be just as it is now. I am happy and I want to stay that way."

You read more about Andrea Ivonne on her blog www.nightlensblog.com or follow her on YouTube @nightlensblog

We're all self-conscious about something, and it doesn't help when our faults get thrown in our faces. You don't want doctors hinting that something is "weird down there," nor do you want someone to tell you you're balding. WE KNOW.

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When you know your kids backwards and forwards, this is the best tool in your arsenal.

Getting our kids to listen to us is not always the easiest of tasks. They're willful and stubborn, but we've got a mighty weapon they are rarely prepared for: reverse psychology. Getting them to convince themselves to want to do something against their own initial intentions takes some work and a whole lot of creativity, but a little sneaky manipulation goes a long way. Here are some clever parents' tricks that are definitely worth taking notes on.

Redditor u/LeanderD Asks:

Parents of reddit, what's your best example of reversed psychology on your kids that actually worked?

He Floated His Idea Through A Back Channel

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Wanted to name my boat. Anything I would think of was dismissed as stupid by my 13 year old son. After deciding on a name, I confided to a male friend my son liked. Made my friend suggest the name as though it was his idea. My son thought the name was perfect. Done.

calypsodweller

We Always Want What We Can't Have

One of my best friends through childhood used to be punished with no salad if she misbehaved. She cherishes salad now and would always try to eat as much as possible during school lunch. Coincidentally, her now husband used to be punished with no books, it had the same effect. I think it's hilarious that they'd be hitting the salad bar and library like some black market their narc parents couldn't reach hahaha.

cookiearthquake

A Deceit That's A Cut Above The Rest

Giphy

Don't know if this counts, but, at my high school (private, boys only) in the 1960's, they made a big deal about how long your hair was, and would occasionally order a boy to go home and "get a haircut".

I thought it was stupid, until years later, a master confided to me at a reunion that the policy was deliberate. The school figured we'd spend so much energy rebelling about hair length, that we would ignore other aspects of teenage rebellion. (Not?) Surprisingly, they were mostly right.

FrankDrakman

Damn! That's smart. Wow.

fangxx456

Oh they don't like long hair?

I'll show them. I'll grow my hair out as lon- what?! No I don't want to go "party"? I gotta try out this horse shampoo.

DankeyKang11

The Forbidden Book

Hi I was a victim,

There was a forbidden book that I was not allow to read on the shelf. My parents said I could only read it if I behave myself.

It was summer holidays and I was playing games all day (after 6 hrs of summer homework). One day I was home alone and had the opportunity to grabbed it. I read like half of it in one go. It was 5000 years of Chinese history.

Safe to say I was bamboozled.

oddstodd

Flowers Of The Queen

My parents always told me my broccoli were the flowers of the queen and that I really shouldn't eat them, or else the queen would get very upset! I, of course, ate the whole broccoli in a few seconds.

Subwoofy

I'm telling the queen and she's gonna be pissed

draculacletus

Sleeping Beauty

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I taught my kids when they were toddlers that no amount of yelling, shaking or hitting can wake a sleeping adult. The only thing that works is a gentle hug and/or a nice kiss on the cheek.

Edit: Probably needed some more details for the reverse psychology aspect to be clear. It went something like this - Step one, tell the kids I'm going to sleep and nothing they do will wake me (head buried face down is the safest position). Step two, after the initial onslaught dies down pretend to awaken on your own. Tell them you got a bit of nap left in you and nothing can wake you, especially not hugs and kisses.

DrMethusael

Holy sh*t...if my daughter woke me up like this I would buy her a pony.

All-Seeing_Elon

I am saving this comment because this will save lives if I ever have kids, stg.

smerter

A Walk In Someone Else's Shoes.

Split custody with my ex. When my son was around 10, he visited two weekends a month. I was waiting tables and didn't have a huge amount to spend, but he was so needy from divorce (and I'm not blaming him, it was ugly), he begged constantly for MORE when he was with me. Whatever more was, it didn't matter... he'd be eating ice cream cone and begging for teriyaki.

I finally realized that he just felt empty, and getting MORE whatever from me wasn't filling him up. His next visit I handed him $100 in cash and told him it was our food/fun budget for 3 days and two nights, and he was in charge of it. I bought him his own wallet to carry. We figured out how many times we were going to eat and what we were going to do, and he paid. He got to keep whatever money he had left...thought he was rich...then realized just how much everything cost. Well. Shoe on other foot then. If we had no money for food, we ate leftovers - and I didn't contribute more to pot. After a few weekends of running short or not getting something he actually wanted because he was foolish with funds, he started to really think about how to spend that money. He budgeted and kept to his budget. And a few times he actually went home with a little cash for his private stash.

Many years later, he thanked me for this. It really changed the way he thought about money and love.

Augumenti

This Is Worth Giving A Shot

Took my 3 year old son to one of those doctor's visits where he was going to get a shot. He was worried about the shot on the whole drive over, almost to the point of tears. We get to the doctor's office and a nurse subtly lets me know that my son is not just scheduled for 1 shot, but 5 of them in the same visit.

I turn to my son with an exaggerated smile and tell him, "Good news! They figured out how to take that one big shot you were going to get and instead break it up into these 5 little tiny shots so it won't hurt nearly as much!"

You could see the relief wash over his face. He stopped squirming and relaxed completely. He took the first shot and even smiled and said "It's true! The small ones don't hurt!"

We actually made it through the third shot before the effect wore off and reality kicked in. Still... I counted it as a victory.

blackbird77

Put This To The Taste

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My mom would tell me she only lets me eat soup after candy and she'd only buy me candy that i didn't like. After a few times, i stopped trying and begged her to let me eat soup first. She gave me a smirk and told me go ahead. This doesn't sound as evil as it was. But trust me i suffered.

turkeypr0

So what was the candy?

Poster_Main

Mint chocolate, raisins, stuff like that. I still hate them to this day. Who the f--- thought while eating chocolate "hmm id like some tooth paste with this."

turkeypr0

This is Truckin' Awesome

Mum had sworn a bit around the house.

When 4, while out at the supermarket, I said F word really loudly.

Very quickly and intently, she asked if I had just said "Truck" and said that was a bad word and not to ever say Truck like that again.

I thought that was the bad word so used that when being naughty.

GodOfTheThunder

The "Silly Mom" Routine

The "Silly Mom" routine.

My kid, and a few other kids I've known, would balk at getting ready to go. I'd grab their clothes and say, "Well, if you won't put on your clothes, I guess I'll put on your clothes. Cute shirt, by the way! Does it go on my foot?"

NO!

"Does it go on my head?"

NO! IT GOES ON ME!

"Oh, that's right, thanks! So, it must go on your legs, right?"

NO!

"I just can't figure this out! Where does this adorable shirt go?"

[kid grabs shirt and puts it on] ON MY TUMMY! SILLY MOM!

"Oh, thank you so much! Now what about these pants? Shirts go on tummies, so...the pants go on the tummy, too, right?"

NO!

[continue until kids have dressed themselves]

I would also do things like hand the kid my keys and say, "Alright, you're driving, I'll sit in the booster seat in back," attempt to feed the kid by putting a spoon up to his ear or his belly button, and attempt to put away his toys in the refrigerator.

insertcaffeine

Some Foot For Thought.

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My mum would always yell at us "if you don't do X, you have to go to bed without socks!"

I never wore socks anyway, and I'm ashamed to admit that this worked.

Splittsky

That would work really well on my son, or make him cry for a really long time... He's 3 and over the last few weeks has decided that he is fully unable to sleep without socks on.

PJQueen

Toddlers man. Completely unpredictable.

SheaRVA

I'm Greens With Envy

My mum had a friend that would put vegetables on her own plate and not the kids.

When the kids asked she would be reluctant to share, "that's grown up food. But I suppose I can let you have a little."

Her kids grew up loving vegetables.

I sat at the dinner table for 3 hours staring at the yucky cauliflower I refused to eat.

laik72

This reminds me of an instance when my child convinced my wife and myself to change our plans for dinner. We were in a grocery store to pick up something quick and easy to eat that we wouldn't have to prepare. Our daughter, wanted none of that, she demanded that she wanted a salad from the salad bar. We started to argue back, but then realized: "Our child demands that we feed her vegetables for dinner instead of a microwaved meal, why are we saying 'No?'"

We had salad for dinner that night.

Galaxy_Ranger_Bob

The Power Of Choice

I don't so much know if you would call it reverse psychology, but I didn't realize it until my dad told me this.

When there were chores that needed doing, he noticed if he asked me to mow the lawn, I would complain and procrastinate. But if he asked would I rather mow the lawn or wash the windows, I'd pick one and just get it done.

Shattered my brain when he told me when I was in my twenties. I use it when I'm coaching or baby sitting all the time and it almost never fails.

AppealToReason16

The Boy Who Cried 'Ouch'

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I've done this one with tens of kids. Any time a kid gets "hurt" (falls down on grass, gets gently hit in the face with a ball, etc.) instead of stopping the activity to pick the kid up and see if they're ok you just scoot them off to the side and resume. Within 10 seconds of not getting all the attention and seeing the fun is resuming they pop right back up and are magically healed.

This of course is only for the "injuries" that aren't actually injuries.

pedanticProgramer

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