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Boy Given 'Zero Percent Chance” Of Living May Be Only Child To Survive Rare Form Of Dwarfism

Tyler Wyllie. PA REAL LIFE/COLLECT

The overjoyed parents of a miracle boy, born weighing just 1lb 1oz and given a “zero percent chance" of staying alive, have told with pride how he is starting school in September – also revealing that he may be the only child with his rare form of primordial dwarfism to have survived.


Able to fit in his trainee paramedic dad Rickie Wyllie's palm when he was born at 31 weeks, Tyler Wyllie, four, of Corby, Northamptonshire, who is now 2ft 6in tall and weighs 21lbs, weighed the same as a loaf of bread.

But, despite being diagnosed with a rare form of primordial dwarfism, the exact type of which is unknown, he has done so well that his mom, Tina Sims, 30, who was advised to terminate her pregnancy at 20 weeks, said he will be starting mainstream school in September.

Tina, who is his full-time caretaker, explained: “If you'd told us when he was born that he would get to this point, we wouldn't have believed you.

“We know life won't be easy for him, but we're so proud of Tyler. There's nothing he can't do, he just has to do things differently.

“He's a very determined little boy. We're sure he will go on to live a normal and happy life and achieve anything he wants to achieve. Even if people say he can't do something because of his condition, I don't think that will ever stop him."

Tyler Wyllie. PA REAL LIFE/COLLECT

Tina, who has two more children, Ethan, two, and Caitlyn, one, with Rickie, 35, recalled how doctors first detected that Tyler's growth was behind and that he had a calcified spot on his liver and bowel, suggesting he might have a genetic condition, at her 20 week scan.

On the morning of her second growth scan at 23 weeks, she woke with heavy bleeding and was rushed into hospital, with doctors convinced her waters had broken and that she was going into labor.

She recalled: “Tyler was diagnosed with intrauterine growth restriction (IUGR) – a condition where a baby's growth slows or stops during pregnancy – and weighing only 350g at that point we were told there was no chance of survival and that he would be stillborn."

Ethan and Tyler with mom Tina and dad Rickie. PA REAL LIFE/COLLECT

Tina continued: “It was really distressing. I was crying a lot, but to me he still had a heartbeat and was still alive. I was desperate for them to be able to do something."

While further investigations found that Tina's waters had not broken but were, for some reason, reducing to dangerously low levels, she waited for labor to begin – only it did not happen.

“Nobody seemed to know what was going on. I was kept in hospital for three weeks waiting for Tyler to be born, but as more time passed, the more I thought he had a chance," she said.

Tyler Wyllie with mom Tina Sims. PA REAL LIFE/COLLECT

“I was eventually discharged, but was back and forth to the hospital for scans after that, which showed that he was growing, but at an extremely slow rate," Tina explained.

Doctors thought Tyler may have had Triploid Syndrome, where a baby has an extra set of chromosomes and which usually results in early miscarriage.

Tina had a chorionic villus sample (CVS), where a sample of cells from the placenta is taken and tested for genetic and chromosomal conditions, but the results were inconclusive.

She explained: “From 20 weeks I was told he could have various things and that he would not survive, or that he'd have cerebral palsy, or be severely disabled. Doctors were advising me to terminate and I was given leaflets on arranging a funeral.

“I was gobsmacked, because he still had a heartbeat and was alive, but it felt like people were giving up on him."

With further scans showing Tyler was at risk because of toxins building up in his blood and heart rate tests showing his heart would stop for varying lengths of time, Tina was desperate for him to be delivered by c-section, but it was deemed too risky for mother and baby.

Dad Rickie Wyllie with Tyler shortly after he was born. PA REAL LIFE/COLLECT

“I was distraught. Even if he had no chance of survival, I wanted to know we'd all tried," she said.

Seeking a second opinion at London's King's College Hospital, she was told Tyler's chances of survival were still less than five percent, but she was given the go ahead for him to be delivered by caesarean section and a bed was found for them at Birmingham Women's Hospital.

Tina said: “They told me there was a strong chance they wouldn't be able to successfully resuscitate him, but they would do their best to keep him alive. I cried tears of joy, because I thought he had a fighting chance."

Tyler Wyllie. PA REAL LIFE/COLLECT

Tyler was delivered by c-section on Monday June 8, 2015 at 12:21pm, weighing exactly 500g (1lb 1oz) at 31 weeks and 5 days.

Recalling her delight, Tina said: “I heard this tiny squeak. It was a cry, but more of a squeak, so we knew he was breathing.

“He was so small. His skin was very thin, it was translucent. He looked very strange and his eyes were fused shut. When he did open them a couple of weeks later, they were all black."

Ethan, Caitlyn and Tyler. PA REAL LIFE/COLLECT

Tina recalled: “He was the size of a baby at 22 weeks, even though he was 31 weeks.

“The doctors were worried about whether they'd physically be able to put a breathing tube in, but they managed it and he was put straight on a life-support machine.

“I was in floods of tears. Rickie was able to go to him and take a photo. That was the first time I saw him – a picture on my phone. I couldn't hold him, but I felt an instant bond."

Tyler Wyllie shortly after he was born. PA REAL LIFE/COLLECT

She continued: “They told me he was a feisty little thing and had amazed everybody.

“He could fit in Rickie's palm. The consultants explained to us what a long journey it was going to be. Nobody thought he would survive."

Tyler was transferred to Leicester Royal Infirmary, closer to the family home, and at eight days old he was given a life-saving operation on his bowel, to fit an ileostomy bag, because he could not go to the toilet.

The couple were warned he might be not make it through surgery but, miraculously, he survived.

Sadly, though, the operation was unsuccessful, because his bowel was kinked, and at three weeks old he had his second major operation to try and fit it again.

Tina recalled: “The first time I held him was at two weeks, but we had to be so careful. Four members of staff had to carry him and place him on my chest, because of all the tubes and because his heart rate would shoot up when he was moved."

Tyler Wyllie. PA REAL LIFE/COLLECT

“He was so delicate. It was amazing to be able to hold him and we got our first family photo," Tina continued.

“Rickie had to wait a bit longer because of the second bowel operation, so got to hold him at four weeks."

In total, tiny Tyler spent six and a half months at the hospital, two months of which he was on a ventilator and being tube fed.

Ethan Wyllie and Tyler Wyllie. PA REAL LIFE/COLLECT

During that time he had 35 blood transfusions, suffered bouts of sepsis – a rare and sometimes deadly reaction to an infection – and pneumonia, also having severe intrauterine growth restriction, chronic lung disease, thyroid hormone deficiency, gastric issues, a bowed femur, making one leg shorter than the other, a lazy eye, global development delay and failure to thrive.

Also, after being home for a week, he developed viral bronchitis, so had to go back into hospital, spending another three weeks on a ventilator.

Tyler was on oxygen, administered through a nasal cannula for 18 months and had an operation to reverse his stoma when he was a year old.

Tyler Wyllie with brother Ethan Wyllie. PA REAL LIFE/COLLECT

At the age of three he was given a diagnosis of primordial dwarfism and has recently been referred to Great Ormond Street Hospital in London, where he has regular MRI scans, due to the risk of a brain aneurysm or stroke because of his condition.

According to the charity for microcephalic primordial dwarfism, Walking With Giants, this is a group of disorders in which growth is proportional, but extremely delayed. Problems begin in the womb, resulting in some of the smallest people in the world.

It is not a specific diagnosis, but rather a class of disorders, with different conditions grouped under it.

And because Tyler has a rare, unknown type of primordial dwarfism, Tina said he could be the only person to survive with his particular strain, according to doctors, which means he grows in proportion, but is a lot smaller than his peers.

Tina explained: “He baffles medical professionals, because he is a true miracle.

“A geneticist told us he could be the only one in the world to have survived with this type of dwarfism. We still do not have an official diagnosis for the type he has."

Tyler Wyllie. PA REAL LIFE/COLLECT

She added: “He is part of the government's 100,000 genome project, which sequences DNA codes to try and improve diagnosis.

“Because they are born so small and because of the extra complications associated with premature babies, so many like Tyler don't make it."

But the plucky lad, who is smaller than his two-year-old brother and close in size and strength to his one-year-old sister, still faces major challenges every day.

Tyler Wyllie. PA REAL LIFE/COLLECT

While he can eat and drink, Tyler has a gastrostomy – a tube inserted into his stomach – to help him get extra nutrients.

He also has global developmental delay, meaning it takes longer for him to reach certain milestones.

He started to walk at two years old, he communicates using the sign language Makaton and only recently starting to put sentences together, so will have additional support at school.

Ethan, Caitlyn and Tyler with mom Tina and dad Rickie. PA REAL LIFE/COLLECT

He also has some issues with balance, caused by having one leg longer than the other, meaning he has to use a buggy because his legs get tired.

Now his parents are fundraising via a JustGiving page for a wheelchair, so he can go on school trips with his friends.

Mom Tina Sims with Tyler shortly after he was born. PA REAL LIFE/COLLECT

Tina said: “People think Tyler's a lot younger than he is, which does upset him. He hates to be thought of as a baby and hates his buggy for that reason.

“Having a wheelchair will help him socially, because he'll be able to join in with the other children and not feel isolated.

“We live in hope that he will be able to catch up. He's got that fight and I hope he has it for the rest of his life.

“Hopefully, people will accept him, although we do worry about his teenage years. That's such a difficult time for children, without having his condition to contend with on top," she said.

“But Tyler's the life and soul and likes to be in the middle of things. He's got a really caring nature and loves looking out for his siblings.

“He loves being on the phone and is very tech savvy. He loves numbers, too, so I think that will be his forte at school."

Tyler Wyllie. PA REAL LIFE/COLLECT

Tina added: “It's hard to believe now that I was once advised not to proceed with my pregnancy, when Tyler is such a lovely happy boy."

To donate click here and to follow Tyler's journey visit www.facebook.com/TinyTylersJourney

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When you know your kids backwards and forwards, this is the best tool in your arsenal.

Getting our kids to listen to us is not always the easiest of tasks. They're willful and stubborn, but we've got a mighty weapon they are rarely prepared for: reverse psychology. Getting them to convince themselves to want to do something against their own initial intentions takes some work and a whole lot of creativity, but a little sneaky manipulation goes a long way. Here are some clever parents' tricks that are definitely worth taking notes on.

Redditor u/LeanderD Asks:

Parents of reddit, what's your best example of reversed psychology on your kids that actually worked?

He Floated His Idea Through A Back Channel

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Wanted to name my boat. Anything I would think of was dismissed as stupid by my 13 year old son. After deciding on a name, I confided to a male friend my son liked. Made my friend suggest the name as though it was his idea. My son thought the name was perfect. Done.

calypsodweller

We Always Want What We Can't Have

One of my best friends through childhood used to be punished with no salad if she misbehaved. She cherishes salad now and would always try to eat as much as possible during school lunch. Coincidentally, her now husband used to be punished with no books, it had the same effect. I think it's hilarious that they'd be hitting the salad bar and library like some black market their narc parents couldn't reach hahaha.

cookiearthquake

A Deceit That's A Cut Above The Rest

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Don't know if this counts, but, at my high school (private, boys only) in the 1960's, they made a big deal about how long your hair was, and would occasionally order a boy to go home and "get a haircut".

I thought it was stupid, until years later, a master confided to me at a reunion that the policy was deliberate. The school figured we'd spend so much energy rebelling about hair length, that we would ignore other aspects of teenage rebellion. (Not?) Surprisingly, they were mostly right.

FrankDrakman

Damn! That's smart. Wow.

fangxx456

Oh they don't like long hair?

I'll show them. I'll grow my hair out as lon- what?! No I don't want to go "party"? I gotta try out this horse shampoo.

DankeyKang11

The Forbidden Book

Hi I was a victim,

There was a forbidden book that I was not allow to read on the shelf. My parents said I could only read it if I behave myself.

It was summer holidays and I was playing games all day (after 6 hrs of summer homework). One day I was home alone and had the opportunity to grabbed it. I read like half of it in one go. It was 5000 years of Chinese history.

Safe to say I was bamboozled.

oddstodd

Flowers Of The Queen

My parents always told me my broccoli were the flowers of the queen and that I really shouldn't eat them, or else the queen would get very upset! I, of course, ate the whole broccoli in a few seconds.

Subwoofy

I'm telling the queen and she's gonna be pissed

draculacletus

Sleeping Beauty

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I taught my kids when they were toddlers that no amount of yelling, shaking or hitting can wake a sleeping adult. The only thing that works is a gentle hug and/or a nice kiss on the cheek.

Edit: Probably needed some more details for the reverse psychology aspect to be clear. It went something like this - Step one, tell the kids I'm going to sleep and nothing they do will wake me (head buried face down is the safest position). Step two, after the initial onslaught dies down pretend to awaken on your own. Tell them you got a bit of nap left in you and nothing can wake you, especially not hugs and kisses.

DrMethusael

Holy sh*t...if my daughter woke me up like this I would buy her a pony.

All-Seeing_Elon

I am saving this comment because this will save lives if I ever have kids, stg.

smerter

A Walk In Someone Else's Shoes.

Split custody with my ex. When my son was around 10, he visited two weekends a month. I was waiting tables and didn't have a huge amount to spend, but he was so needy from divorce (and I'm not blaming him, it was ugly), he begged constantly for MORE when he was with me. Whatever more was, it didn't matter... he'd be eating ice cream cone and begging for teriyaki.

I finally realized that he just felt empty, and getting MORE whatever from me wasn't filling him up. His next visit I handed him $100 in cash and told him it was our food/fun budget for 3 days and two nights, and he was in charge of it. I bought him his own wallet to carry. We figured out how many times we were going to eat and what we were going to do, and he paid. He got to keep whatever money he had left...thought he was rich...then realized just how much everything cost. Well. Shoe on other foot then. If we had no money for food, we ate leftovers - and I didn't contribute more to pot. After a few weekends of running short or not getting something he actually wanted because he was foolish with funds, he started to really think about how to spend that money. He budgeted and kept to his budget. And a few times he actually went home with a little cash for his private stash.

Many years later, he thanked me for this. It really changed the way he thought about money and love.

Augumenti

This Is Worth Giving A Shot

Took my 3 year old son to one of those doctor's visits where he was going to get a shot. He was worried about the shot on the whole drive over, almost to the point of tears. We get to the doctor's office and a nurse subtly lets me know that my son is not just scheduled for 1 shot, but 5 of them in the same visit.

I turn to my son with an exaggerated smile and tell him, "Good news! They figured out how to take that one big shot you were going to get and instead break it up into these 5 little tiny shots so it won't hurt nearly as much!"

You could see the relief wash over his face. He stopped squirming and relaxed completely. He took the first shot and even smiled and said "It's true! The small ones don't hurt!"

We actually made it through the third shot before the effect wore off and reality kicked in. Still... I counted it as a victory.

blackbird77

Put This To The Taste

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My mom would tell me she only lets me eat soup after candy and she'd only buy me candy that i didn't like. After a few times, i stopped trying and begged her to let me eat soup first. She gave me a smirk and told me go ahead. This doesn't sound as evil as it was. But trust me i suffered.

turkeypr0

So what was the candy?

Poster_Main

Mint chocolate, raisins, stuff like that. I still hate them to this day. Who the f--- thought while eating chocolate "hmm id like some tooth paste with this."

turkeypr0

This is Truckin' Awesome

Mum had sworn a bit around the house.

When 4, while out at the supermarket, I said F word really loudly.

Very quickly and intently, she asked if I had just said "Truck" and said that was a bad word and not to ever say Truck like that again.

I thought that was the bad word so used that when being naughty.

GodOfTheThunder

The "Silly Mom" Routine

The "Silly Mom" routine.

My kid, and a few other kids I've known, would balk at getting ready to go. I'd grab their clothes and say, "Well, if you won't put on your clothes, I guess I'll put on your clothes. Cute shirt, by the way! Does it go on my foot?"

NO!

"Does it go on my head?"

NO! IT GOES ON ME!

"Oh, that's right, thanks! So, it must go on your legs, right?"

NO!

"I just can't figure this out! Where does this adorable shirt go?"

[kid grabs shirt and puts it on] ON MY TUMMY! SILLY MOM!

"Oh, thank you so much! Now what about these pants? Shirts go on tummies, so...the pants go on the tummy, too, right?"

NO!

[continue until kids have dressed themselves]

I would also do things like hand the kid my keys and say, "Alright, you're driving, I'll sit in the booster seat in back," attempt to feed the kid by putting a spoon up to his ear or his belly button, and attempt to put away his toys in the refrigerator.

insertcaffeine

Some Foot For Thought.

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My mum would always yell at us "if you don't do X, you have to go to bed without socks!"

I never wore socks anyway, and I'm ashamed to admit that this worked.

Splittsky

That would work really well on my son, or make him cry for a really long time... He's 3 and over the last few weeks has decided that he is fully unable to sleep without socks on.

PJQueen

Toddlers man. Completely unpredictable.

SheaRVA

I'm Greens With Envy

My mum had a friend that would put vegetables on her own plate and not the kids.

When the kids asked she would be reluctant to share, "that's grown up food. But I suppose I can let you have a little."

Her kids grew up loving vegetables.

I sat at the dinner table for 3 hours staring at the yucky cauliflower I refused to eat.

laik72

This reminds me of an instance when my child convinced my wife and myself to change our plans for dinner. We were in a grocery store to pick up something quick and easy to eat that we wouldn't have to prepare. Our daughter, wanted none of that, she demanded that she wanted a salad from the salad bar. We started to argue back, but then realized: "Our child demands that we feed her vegetables for dinner instead of a microwaved meal, why are we saying 'No?'"

We had salad for dinner that night.

Galaxy_Ranger_Bob

The Power Of Choice

I don't so much know if you would call it reverse psychology, but I didn't realize it until my dad told me this.

When there were chores that needed doing, he noticed if he asked me to mow the lawn, I would complain and procrastinate. But if he asked would I rather mow the lawn or wash the windows, I'd pick one and just get it done.

Shattered my brain when he told me when I was in my twenties. I use it when I'm coaching or baby sitting all the time and it almost never fails.

AppealToReason16

The Boy Who Cried 'Ouch'

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I've done this one with tens of kids. Any time a kid gets "hurt" (falls down on grass, gets gently hit in the face with a ball, etc.) instead of stopping the activity to pick the kid up and see if they're ok you just scoot them off to the side and resume. Within 10 seconds of not getting all the attention and seeing the fun is resuming they pop right back up and are magically healed.

This of course is only for the "injuries" that aren't actually injuries.

pedanticProgramer

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