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Jameela Jamil Opens Up About Living With Rare Disease That Causes Her To Have Extremely Elastic Skin

Screenshots of Jameela Jamil
@jameelajamil/Instagram

The 'She-Hulk: Attorney at Law' actress shared her experiences with Ehlers-Danlos Syndrome (EDS) in an Instagram post.

AB Keith
By AB KeithDec 30, 2022
AB Keith
AB Keith is an educator turned roadtripper who is currently teaching virtually while touring the USA. Her dream is to visit all the national parks and create a series of nonfiction children's books about NP adventures through the eyes of her dog, Backpack Benny.
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Actor Jameela Jamil posted one of her TikTok videos to Instagram earlier this week showing off her "elastic skin."

In the video, Jamil pulled on her cheeks and explained that the elasticity of her skin is one of the effects of Ehlers-Danlos Syndrome (EDS), which she was diagnosed with at the age of 9.

She continued to share that the connective tissue disorder affects the whole body and its functions, including bruising, joint flexibility, digestive issues, and even loss of consciousness when rising to stand.

The video began with Jamil stretching her cheeks and then demonstrating the hypermobility in her elbow.

The She-Hulk: Attorney at Law actor said:

"As you can see, nothing bends the right way. Everything bends the right and wrong way, and yes, that is very sexy - thanks for asking."

The video, posted below, is captioned:

"Sorry I don't talk about this more often."
"The internet made fun of me over my health problems and it made me suicidal for a while."
"But they are just a bunch of ignorant arseholes who haven't a hundredth of our strength, they can't imagine surviving what we survive, so they choose to gaslight us about it all instead."
"I'm done not talking to people who MATTER about this hugely important subject because a bunch of people lucky to have good health, have no souls."
"Let's raise awareness on this subject together, and save some motherf**king lives!"

Many who are living with EDS thanks Jamil for educating others.

@jameelajamil/Instagram

@jameelajamil/Instagram

@jameelajamil/Instagram

A few even commented that if not for Jamil spreading awareness, they wouldn't have been diagnosed themselves.

@jameelajamil/Instagram

@jameelajamil/Instagram

@jameelajamil/Instagram

And most commented on her post thanking her for informing others.

@jameelajamil/Instagram

@jameelajamil/Instagram

@jameelajamil/Instagram

Jamil wanted to share the video to talk about the condition and to also tell others who experience similar symptoms to see a doctor.

She finished her video:

"Please find out before it is too late and before a doctor makes a massive mistake with you because they didn't know you had this."

She said that often times, people struggling with EDS aren't taken seriously because they "look healthy."

Thank you for spreading awareness!

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